Hospice: A Healing Experience

Even though many folks would prefer not to talk about death and dying, those who work in Hospice know that this is not an option. The counseling department and hospice team knows the value of offering this last healing experience to family members after their loved one has died. Bereavement support is just one of many services Hospice of Southern Illinois offers to help families cope with this portion of the end-of-life journey.

Bereavement is defined as the condition of having been deprived of something or someone valued, especially through death. Also, bereavement can be a state of intense grief after the loss of a loved one.

At Hospice of Southern Illinois, the counseling department works very hard to help families heal and cope with their loss. Calls are made to the family within 7 days of the loved one passing. Then, one of the bereavement counselors will follow up again within 30 days to see how the family continues to fare. Each person’s healing and coping process varies. So, if a visit or an appointment to see the family is needed to discuss the loss of their loved one, this is a time when families can do that to get the extra support they may need. One-on-one support is not always the best option for everyone. Hospice of Southern Illinois hosts several grief groups and a lunch gathering for widows and widowers which are available on a monthly basis. Further, for a more personal experience, the counseling department follows-up with calls on the loved one’s birthday and one-year anniversary of the death of the loved one. For the first year of the loss of a loved one, these can be especially difficult times.

No one has to go through the dying process alone. Hospice of Southern Illinois can help. If you or a family member is experiencing grief, please call 1-800-233-1708 to speak with one of the members from our experienced and dedicated counseling team.

Offered by Cathy Knowlton, MA, MAPS, LPC

Chaplain/Bereavement Counselor

Making Choices About Hospice

Making Choices About Hospice

What is hospice?

Hospice is a special healthcare option for patients and families faced with a terminal illness.

Hospice care is for patients who have a terminal illness with a prognosis of 6 months or less; those who are no longer receiving curative treatment; have a focus on pain and symptom management with the goal of enhancing the quality of life.

Hospice is a team that takes many people to meet the unique needs of each patient, including the patient, the family, physicians, nurses, hospice aides, social workers, counselors, and trained volunteers.

Why choose hospice care?

Hospice specializes in control of pain and other symptoms so patients and families can focus on making the most of the time they have left together. When a person is diagnosed with a terminal illness, family and friends share their illness. Counselors can assist patients and families, with not only the physical pain and symptoms, but emotional and spiritual needs too.

Not all hospices are the same. All hospices have a set of guidelines and regulations to follow, but beyond those each hospice, just like a doctor’s office or pharmacy, have specific services and programs to better assist their patients and families to provide them with the individualized care they deserve.

Who pays for hospice?

Hospice is covered under Medicare, Medicaid, and most private insurance company’s. Some hospices have programs or accept donations or memorials to help provide care regardless of ability to pay.

Where is hospice care provided?

Hospice care is provided in the setting that best meets the need of the patient and family. People often think hospice is a place; actually, hospice is a service that comes to the patient and is provided in the home or home-like setting, including Private Home, Home Care, Nursing Home Care, Assisted Living, Hospice Home (like Relais Bonne Eau), or Inpatient Hospital Care.

When is it time to call hospice?

The best time to learn about hospice is before it is needed. Understanding the healthcare options, the hospice process, and end-of-life journey before it happens can relive lots of anxiety and stress that can be associated with death. Most hospices provide educational presentations or will meet with no obligation to answer any questions individuals have.

Making a referral is appropriate when the patient has a terminal illness with a prognosis of 6 months or less, wants comfort care rather than curative treatment, or curative treatment is no longer the choice or option of the patient. Hospice is a service provided to individuals with many diagnoses. Cancer patients are most known to call hospice, but hospice care can benefit those dealing with all end-stage diseases, including heart disease, lung disease, Alzheimer’s, stroke, AIDS, and others. Referrals to hospice can be made by physicians, social workers, discharge planners, nursing home employees, family members, friends, clergy, and patients.

Too often referrals are not made until the patient has uncontrolled symptoms or is near death. Although hospice can do much to assist at this time, the patient and family can benefit more if hospice is called early in the end-of-life journey. No one has to die alone. Hospice of Southern Illinois can help. Call 1-800-233-1708 to speak with a member of our team to talk about any questions concerning hospice care, our expertise since 1981. 

June is PTSD Awareness Month - WHV Level III Status Achieved

June is PTSD Awareness Month

            Hospice of Southern Illinois is proud to announce our Level III Partner Status in the We Honor Veterans program, a collaboration between the NHPCO, VA, and community hospices.

            As part of our commitment to the We Honor Veterans program, we are helping raise awareness about PTSD (Post-Traumatic Stress Disorder) because June is PTSD Awareness Month. Our involvement, like many other hospices, ensures Veterans are getting the care they are entitled to and deserve. In addition to the healthcare benefits we offer to all patients, our interdisciplinary hospice team of physician, nurses, social workers, bereavement counselors, CNAs, and volunteers has special training to address the unique and specific physical, social, and emotional needs of Veteran patients and families, which can include PTSD.

            PTSD stands for Post-Traumatic Stress Disorder and can occur immediately following a traumatic event, or even rise up years later (in the case of a hospice patient, during their final months or days). Our mission is to enhance the quality of life at the end-of-life, so it is our goal to relieve PTSD stress and help them cope with their experiences so they can leave this world free of emotional pain. Below are steps to raising awareness about PTSD in order to identify, relate, and reach out.

10 Steps to Raise PTSD Awareness

1.   Know more about PTSD.
Understand common reactions to trauma and when those reactions might be PTSD.

2.   Challenge your beliefs about treatment.
PTSD treatment can help. We now have effective PTSD treatments that can make a difference in the lives of people with PTSD.

3.   Explore the options for those with PTSD.
Find out where to get help for PTSD and learn how to choose a therapist. Also see our Self-Help and Coping section to learn about peer support and other coping strategies.

4.   Reach out. Make a difference.
You can help a family member with PTSD, including assisting your Veteran who needs care. Know there is support for friends and family too.

5.   Know the facts.
More than half of US adults will experience at least one trauma in their lifetime. How common is PTSD? For Veterans and people who have been through violence and abuse, the number is higher.

6.   Expand your understanding.
Learn about assessment and how to find out if someone has PTSD. Complete a brief checklist or take an online screen to see if a professional evaluation is needed. June 20th is National PTSD Screening Day.

7.   Share PTSD information.
Share handouts, brochures, or wallet cards about trauma and PTSD.

8.   Meet people who have lived with PTSD.
Visit AboutFace, an online gallery dedicated to Veterans talking about how PTSD treatment turned their lives around.

9.   Take advantage of technology.
Download PTSD Coach mobile app and treatment companion apps in the National Center for PTSD's growing collection of mobile offerings.

10.        Keep informed.
Get the latest information about PTSD. Sign up for our PTSD Monthly Update, or connect with us on Facebook, Twitter and YouTube.

Resource is provided by: http://www.ptsd.va.gov/about/ptsd-awareness/steps_raise_awareness.asp

     Please contact Hospice of Southern Illinois to speak with one of our special trained staff members about Veteran specific hospice care or PTSD, or visit http://www.ptsd.va.gov. We will be happy to take the time to get your questions answered. Help us share, educate, and reach out by subscribing to our blog and suggesting it to friends who will spread our message: Hospice of Southern Illinois is here to teach you what hospice is, what we are about, and what we can do for you and your loved ones. No one has to go through the dying process alone. Hospice of Southern Illinois can help.

Live well, laugh often, and love much,

Christine Juehne

Hospice of Southern Illinois

Community Education

1-800-233-1708

www.hospice.org

 



March is National Social Work Month

March is National Social Work Month. First commissioned by President Reagan, The National Association of Social Workers and its members spend this month celebrating the accomplishments of social workers and the services they provide to vulnerable populations (Chase’s Calendar of Events 2013). If you know a social worker or counselor, take an extra moment to thank them for their work and talents. In hospice, social workers and bereavement counselors make up our counseling team and are an important part of the hospice journey. Our hospice program would not be complete without their contribution to those we serve. They provide support to patients and families experiencing illness, stress, grief, and much more.

Hospice of Southern Illinois’ counseling team is committed to the whole family. We not only provide physical, emotional, and spiritual support for the patient, but for the family as well. Our counseling team is experts in dealing with topics people experience during their end-of-life journey and can provide support over the phone or face-to-face based on the needs and wants of patients and families. They have received special training to help Veterans at the end-of-life, because Veterans have different counseling needs because of the unique life experiences they encountered. This training is through the We Honor Veterans partnership with the VA and NHPCO. Further, we provide support to the family up to 13 months after a loved one has passed on an as needed basis, complimented by a Journey’s Newsletter, a grief support newsletter sent out once a month to families who may not need that face-to-face contact but find comfort in reading stories and tips for coping shared by others. These are all free services that can be utilized by Hospice of Southern Illinois’ patients and families, in addition to individuals and their loved ones who have not been in our hospice program through a counseling service known as the community bereavement program.  

The hospice journey for each person is unique just like their life experiences, which is why end-of-life emotional and spiritual needs vary based on the needs and wants of patients and families. The peace of mind patients and families can be reassured of is that no matter how much or how little support you need, a member of our counseling team is on-call 24/7 to answer questions and provide support to a terminally ill individual and their family during this delicate time in a person’s life. If you would like to review an educational booklet, feel free to download them; click here. 

Help us share, educate, and reach out by subscribing to our blog and suggesting it to friends who will spread our message: Hospice of Southern Illinois is here to teach you what hospice is, what we are about, and what we can do for you and your loved ones. No one has to go through the dying process alone. Hospice of Southern Illinois can help.

Live well, laugh often, and love much,

Christine Juehne

Hospice of Southern Illinois

Community Education

1-800-233-1708

www.hospice.org

* * *

Spirituality

Spirituality

Spirituality is someone’s source of inspiration or orientation in life; this can involve discovering one’s deeper values as well as the meaning by which people live; it can include being connected to a larger reality or being concerned with yielding to a wider understanding of self or joining with other individuals, the human community, nature, or the divine realm.

Spirituality exists whenever we struggle with the issues of how our lives fit into the greater scheme of things. This is especially true when our questions don’t give way to specific answers or give rise to specific practices such as prayer or meditation.

Questions to be considered in dealing with one’s spirituality:

1-What gives you meaning and purpose?

2-What nourishes you; what replenishes you as you give, share, or create?

3-What is your personal understanding (or your patient’s understanding) of simple truths like      trust, suffering, grace, prayer, connections, and success (what does it look like?)

4-What do you choose to do for fun?  What are some new options, some new resources that can offer grace to our clients? 

5-What brings Hope? What takes your hope away? What does it mean to have enough hope for the journey?

6-How do we call forth courage in others?  How do we validate the gifts, the strengths, and the limits (which the world would name as weaknesses?)

We encounter spiritual issues every time we wonder where the universe comes from, why we are here, or what happens when we die. We also become spiritual when we are moved by values such as beauty, love, or creativity that seem to reveal a meaning or power beyond our visible world.

What are spiritual practices that are associated with one’s spirituality?

  Mindfulness: (awareness of what is happening in the present moment) as well as meditation can be helpful resources. 

Prayer: (that is, connecting to one’s higher power) can be done verbally, silently, or contemplatively.  Use of a favorite scripture or quote or word (mantra) can be used as a starting point for prayer. 

Music: can be used to encourage meditation & reflection as well as the use of comfort measure such as a rosary, worry bead, or small stone can be kept in one’s pocket or hand.

An idea or practice is spiritual when it reveals our personal desire to establish a felt-relationship with the deepest meanings or powers governing life. Love or compassion is often described as the mainstay of spiritual development. (Wikipedia definition of Spirituality)

Final thoughts: Sometimes we need to chart a new course; Change is inevitable; Develop a new awareness of all that is going on around us as well as available resources can smooth the transition.

Based on a presentation given by Cathy from our Bereavement Team. 

Help us share, educate, and reach out by subscribing to our blog and suggesting it to friends who will spread our message: Hospice of Southern Illinois is here to teach you what hospice is, what we are about, and what we can do for you and your loved ones. No one has to go through the dying process alone. Hospice of Southern Illinois can help.

Live well, laugh often, and love much,

Christine Juehne

Hospice of Southern Illinois

Community Education

1-800-233-1708

www.hospice.org

Hospice Helps Cardiac Patients

February marks Hearth Month. Hospice of Southern Illinois is advocating for February’s Heart Month to kick off a new initiative to serve our heart patients and their families better now and in the future. This initiative is being led by our Physician Medical Director, Dr. Lynne Nowak, who is available to our nursing and counseling teams 24 hours a day to ensure the best hospice care in the area. Please feel free to learn more about how hospice helps cardiac patients to improve quality of life at the end of life by reviewing the flyer below or calling to speak with someone from our hospice team at 1-800-233-1708.  

 Help us share, educate, and reach out by subscribing to our blog and suggesting it to friends who will spread our message: Hospice of Southern Illinois is here to teach you what hospice is, what we are about, and what we can do for you and your loved ones. No one has to go through the dying process alone. Hospice of Southern Illinois can help.

Live well, laugh often, and love much,

Christine Juehne

Hospice of Southern Illinois

Community Education

1-800-233-1708

www.hospice.org

Grief and the Holidays

Grief & the Holidays

Trying to cope with the loss of a loved one during the holiday season is not easy. The holiday season is a naturally stressful time of the year. Spending time with family, cooking, and gift giving can all be very rewarding. However, being surrounded by a lot of people, preparing food, shopping, and wrapping gifts require time and effort.

The grieving process is a natural response to the loss of a significant relationship. During the grieving process and adjustment period following your loss, you can experience a wide range of emotional responses. At times, these emotional responses can be difficult to cope with and understand. Though there is no hard and fast solution to the grieving process. Listed below are some suggestions that may help to ease the stress and minimize the negative emotions people encounter during the holiday season.

1.      Set boundaries on your expectations and other’s expectations.

2.      Have a meeting or discussion with family and friends about holiday plans.

3.      Rehearse how you will respond to difficult situations beforehand.

4.      Observe the day in a way that has meaning for you. 

5.      Make the holiday an opportunity for healing, and day for renewal of your physical, emotional and spiritual needs.

6.      Be Flexible.

7.      Recreate or change traditions. Start something new.

8.      Bring special touches of your loved one to the holiday.

9.      Focus on the concept of gifts and gift giving. Buy a gift for yourself as well as others.

·      What is the gift you were given by your loved one?

·      What did they teach you about life and living?

·      What positive qualities did they bring out in you?

·      What was their purpose for being in your life?

10.  Have a plan.

There are opportunities for grief support available through Hospice of Southern Illinois. If you’d like assistance from a member of our counseling services team, please call (800) 233-1708 and request to speak with a member of our Counseling Services Department. Our counseling services are open to the community and Hospice of Southern Illinois families alike. 

Hospice of Southern Illinois, Counseling Department, facilitates monthly grief support groups on the second Wednesday of each month (3:00- 4:30 p.m.) at Relais Bonne Eau located at 7325 Marine Road, Edwardsville and on the third Wednesday of each month (3:00- 4:30 p.m.) at Garden Place Senior Living located at 351 Lockwood Drive, Red Bud. We also offer a Tree of Life Ceremony to honor and memorialize your deceased loved one. The Tree of Life Ceremony, where families can hang the name of their loved one on the Tree of Life and remember the one they love and lost. This ceremony is held at 3 locations on the first Sunday in December each year.

Help us share, educate, and reach out by subscribing to our blog and suggesting it to friends who will spread our message: Hospice of Southern Illinois is here to teach you what hospice is, what we are about, and what we can do for you and your loved ones. No one has to go through the dying process alone. Hospice of Southern Illinois can help.

Live well, laugh often, and love much,

Christine Juehne

Hospice of Southern Illinois

Community Education

1-800-233-1708

www.hospice.org